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  1. The patient can explicitly click to link their record to the research team through the registration page of the research team.

  2. An existing non-research team with consent to use the patient's record consents the patient to share data with the research. The Non-research team then adds the research team to the patient's PKB record using PKB's web site without the patient having to do anything. The patient and carer are notified by e-mail that this happened.

  3. An existing non-research team with consent to use the patient's record consents the patient to share data with the research. The Non-research team's computer system then adds the research team to the patient's PKB record using the PKB API without the patient having to do anything. The patient and carer are notified by e-mail that this happened.

  4. For as long as the research team has access to a patient's record they can see the data using the PKB web site and they can copy the data using the PKB API.

Managing sharing with research teams

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