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Introduction
Patient Knows Best (PKB) emerges as a valuable tool for patients with diabetes. PKB empowers patients to take control of their diabetes through personalized care plans. These plans are tailored with a wealth of resources and guidance on monitoring and handling their condition. By using PKB, teams can reduce unnecessary face-to-face appointments, leading to cost savings for the organisation.
Below are some of the workflows currently utilised by teams that use PKB, along with an overview of key features teams should use.
Current problems
Teams experience a high level of face-to-face appointments
Telephone conversations are lengthy
Teams want to provide patients with a digital care plan
Teams want to give patients online resources
Reduce appointments
The team want to deliver a digital PIFU pathway
PKB Solution
Validating waitlist via questionnaire
Secure messaging feature allows professionals to share information with patients
Patient-initiated messaging for PIFU pathways
Support patients waiting well with care plans and a library of resources
Send patients digital appointments and appointment letters
Validate support required by collecting data from patients to triage them ahead of interactions (care plans, questionnaires, messaging)
Informed consent and shared decision tool care plans
Access to laboratory results
Symptom and measurement tracker
Benefits
Saving time and money
Patients have access to information in the library
Patients can follow the correct treatment plans
Questionnaires can be triggered out to the patient
Laboratory results, no unnecessary phone calls to find out results
Improve patient engagement and satisfaction
Workflow for newly diagnosed diabetic patients
Newly diagnosed diabetic patients can benefit from having access to their PKB record, to support them to track their blood sugars, providing education and resources, access to their blood results, care plans and direct contact with their clinical team while they navigate their new diabetes.
Workflow for diabetic monitoring
Teams want patients to track and monitor any symptoms, measurements and blood results related to their diabetes using a care plan provided by the team.
Case study
Diabetes Centre, Sandwell Hospital, Sandwell and West Birmingham Hospitals NHS Trust, West Bromwich, UK and City Hospital Diabetes Centre, Sandwell and West Birmingham Hospitals NHS Trust, Birmingham, UK
The study investigated the potential value and impact of the web-based personal health record system, Patients Know Best (PKB), on diabetes care and self-management
Results
After six months, 121 individuals with Type 1 diabetes had enrolled and used PKB. The survey respondents (50% male, 50% female, median age 45) reflected the patient population.
Key findings included
73% had used PKB for over 3 months.
73% found registration easy or very easy
92% used secure messaging
64% viewed blood test results online
The time-saving potential was rated 91%-95%
Personal health records like PKB are popular among people with Type 1 diabetes and have the potential to enhance their relationship with their healthcare team. To read the full case study, click here.
Key PKB features
PKB can be used in all areas of perioperative care. Below are the key featured teams already using.
Questionnaires
Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.
Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded and the patient has a copy. Teams can also identify patients suitable for virtual appointments or pre-operative assessment questionnaires.
PKB's advanced questionnaire functionality
The features include:
Scoring and calculations
Branching, allowing patients to complete the parts of the questionnaire that are relevant to them
Coded fields questionnaires can be mapped to clinical codes
Patients can save drafts
Send questionnaires to patients who aren’t registered or already in your team
Questionnaire templates
Health assessment questionnaire
Annual review questionnaire
Messaging
Patients have access to message their healthcare team (saving time on the phone)
The Admin team can triage messages. Either resolving or passing onto another speciality team
Team-based messaging allows teams to automatically receive secure messages and questionnaires as a group rather than as individuals.
Library
A wealth of resources on all diabetic conditions
National and local information and guidance
Videos
Hospital and organisation information
Medication advice
Care plans
PKB have a care plan toolkit with examples of care plan templates used by teams. There is a process for teams to amend care plans or create new ones here.A selection of care plans are below.
Personalised care plan templates
Disease care plan with individualised templates with escalation plans
A place to track and record symptoms related to the speciality
Journal
Digitalise journal
Pre and post-treatment or for symptoms and thoughts recording
Data
Appointments
Appointment letters
Clinical letters
Further information
Using a web-based PHR to build closer relationships with patients with Type 1 diabetes: investigates what extent a web-based personal health record system (PKB), could add value to diabetes care
Diabetic care plans example: Diabetes annual health check care plan converted into a PKB care plan that can be edited and shared