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We see this dilemma facing every country. They need this technology, their citizens need this technology, and they everyone need it done right, right now. But governments do not know how to build and they do not know how to buy.
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In England, 1 in 17 people has a rare disease (Donaldson, 2010): most of these people know more about their situation than most of the doctors looking after them. 25-50% of patients at hospitals are from outside the region (Patients Know Best research 2024): the hospital does not have access to the records from outside the region. Long-term conditions accounts account for about 70% of the money the country spends on health and social care (Nuffield Trust, 2024): what these patients do matters more than what their doctors do.
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