How we use your information

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To learn how to use your Account, the user manual is at:  https://manual.patientsknowbest.com/ Home

1. The terms we use

• “You” This means you, the user and the person controlling who can see or share their record

• “Patients Know Best (PKB) Account” is the online account that shows you your personal health information shared by your care providers and gives you some control over who can see it, including what you may choose to add about yourself

• “Patients Know Best (PKB) Record” is the information about you provided by your care providers and is shared between themselves to provide you with safe care before you create your PKB Account

• “Patient Contributed Data” means the information you add to your PKB Account and choose to make visible to professionals providing your care and anyone else you choose

• “Provider Contributed Data” means the information professionals have recorded and shared between themselves through the PKB Record and with you in your PKB Account

• “The Service” is the IT platform and software PKB use to provide your online PKB Account and PKB Record

• “Carers” are friends, family or anyone you choose to give access to your PKB Account

• “Professionals” are the people working for organisations who have been given access to PKB Records because they help to deliver your care. These people have had their identity and qualifications verified, for example, doctors and nurses, and have been trained in handling confidential patient information

• “Organisations” are customers of PKB that have information about you and that you can choose to trust to see your records, for example, hospitals or GPs

• “Encryption” is a method of securing your information so that only those with the correct credentials can access it

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Information on these roles is found in the PKB manual:https://manual.patientsknowbest.com/ Home

3. Purpose of PKB

We aim to bring you your health records from anywhere, and for you to control who sees these records.

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• If you access our service using your NHS login details, the identity verification services are managed by NHS Digital. NHS Digital is the controller for any personal information you provide to NHS Digital to get an NHS login account and verify your identity, and uses that personal information solely for that single purpose. For this personal information, our role is a “processor” and we must act under the instructions provided by NHS Digital (as the “controller”) when verifying your identity. This restriction does not apply to the personal information you provide to PKB separately.See the privacy notice and terms and conditions for NHS login managed by NHS Digital. 

• We use the notifications service provided by NHS Digital for sending you information. To do this we will only send a minimal amount of information necessary. Further information about the service can be found in theprivacy notice for the NHS App managed by NHS Digital.

5. Confidentiality

PKB fulfils its duty of confidentiality through clauses in employment contracts, corporate policies covering confidentiality and security, providing ongoing training to all employees and requiring the same of any company we contract to support us. 

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You can edit or hide information you have added until it has been viewed by a health or social care professional. After a Professional has viewed information in your PKB Account it may be retained by the Organisation. In most cases, this retention period will typically be 8 years as outlined in the Records Management Code of Practice. 

You cannot edit or hide information others have added. If you would like to change or hide information that has been added by an Organisation about you, for example, if it is incorrect, you must contact that Organisation to request this. All of your PKB health data is held securely and is encrypted in storage and in transit.

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You can see a copy of the template DPC below, although the specifics of the agreement may vary slightly from Organisation to Organisation:

NHS Data Processing Contract 

For a breakdown of all organisations using PKB, please see this map                                                                                                                                                                           

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You can write to our DPO: dpo@patientsknowbest.com 

Patients Know Best Ltd Contact Routes 

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A User's continued use of the Service constitutes the User’s agreement to this privacy notice. If you feel you need further information please refer to The PKB Manual and the PKB Information Governance Wiki below or contact us through patientsknowbest.com/contact-us .

• PKB Manual:https://manual.patientsknowbest.com/legal/privacy/india  Privacy Notice India

• PKB Information Governance Wiki:https://igwiki.patientsknowbest.com/space/IG/home 

Please Note: If you registered with PKB prior to 2nd February 2022, please see the previous Privacy Notice related to your registration and consent.

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Approval and review 

PKB-PN v5.3 was approved by the DPO, Head of Information Governance and the Executive Board on the 24th of August 2022.	Image Added
Privacy Notice - Version 5.3 (

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