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The PKB user guide is available at https://manual.patientsknowbest.com/ Manual
Terminology
“You” This means the user and the person giving their consent to see or share their record
“Patients Know Best (PKB) Account” is an online account that that lets you gather, edit, store, and share personal health information
“The Service” is the IT platform used to provide your online account
“Carers” are friends, family or other people that help you with your care
“Professionals” are employees of organisations using PKB whose identity and qualifications have been legally verified, for example, doctors and nurses
“Organisations” are customers of PKB that are involved in your care and that you trust to view your records, for example, hospitals
“Encryption” secures data in such a way that only those with the correct credentials can access it
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This allows professionals to access your record in an emergency, using PKB's Break the Glass functionality. Break The Glass allows a professional to see a your record without your consent. This is for emergency situations when you lack the capacity to consent (e.g the you are unconscious) and the professional's clinical judgement is that your safety requires the professional to see the record. More information on this functionality can be found here: https://manual.patientsknowbest.com/privacy-officer/break-the- Break the glass
You may enable a feature called Disable Sharing if you do not wish to share your record with any Professional, and this will also prevent professionals from being able to Break the Glass.
After Disable Sharing is enabled by an Organisation's Privacy Officer, Professionals will only be able to see data they have contributed to the record. More information on Disable Sharing is available here: https://manual.patientsknowbest.com/privacy-officer/disabled- Disabled sharing
The one exception is children’s records, Professionals have control to ensure the safety of the child’s medical care. Full control of your record is possible from 11 years old barring special circumstances.
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