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How we use your information
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To learn how to use your Account, the user manual is at https://manual.patientsknowbest.com/ Home
1. The terms we use
“You” This means you, the user and the person controlling who can see or share their record
“Patients Know Best (PKB) Account” is the online account that shows you your personal health information shared by your care providers and gives you some control over who can see it, including what you may choose to add about yourself
“Patients Know Best (PKB) Record” is the information about you provided by your care providers and is shared between themselves to provide you with safe care before you create your PKB Account
“Patient Contributed Data” means the information you add to your PKB Account and choose to make visible to professionals providing your care and anyone else you choose
“Provider Contributed Data” means the information professionals have recorded and shared between themselves through the PKB Record and with you in your PKB Account
“The Service” is the IT platform and software PKB use to provide your online PKB Account and PKB Record
“Carers” are friends, family or anyone you choose to give access to your PKB Account
“Professionals” are the people working for organisations who have been given access to PKB Records because they help to deliver your care. These people have had their identity and qualifications verified, for example, doctors and nurses, and have been trained in handling confidential patient information
“Organisations” are customers of PKB that have information about you and that you can choose to trust to see your records, for example, hospitals or GPs
“Encryption” is a method of securing your information so that only those with the correct credentials can access it
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Information on these roles is found in the PKB manual:https://manual.patientsknowbest.com/ Home
3. Purpose of PKB
We aim to bring you your health records from anywhere, and for you to control who sees these records.
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For some Organisations, PKB has a Joint Controller Arrangement (JCA) that sets out what data each party is responsible for. You can see a copy of the template JCAs below, although the specifics of the agreement may vary slightly from Organisation to Organisation:
For other Organisations, PKB has an Information Processing Agreement, which says that PKB is a Processor for that Organisation’s data.
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You can write to our DPO: dpo@patientsknowbest.com
Patients Know Best Ltd Contact Routes
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A User's continued use of the Service constitutes the User’s agreement to this privacy notice. If you feel you need further information please refer to The PKB Manual and the PKB Information Governance Wiki below or contact us through patientsknowbest.com/contact-us .
PKB Information Governance Wiki: https://wiki.patientsknowbest.com/space/IG/
Please Note: If you registered with PKB prior to 2nd February 2022, please see the previous Privacy Notice related to your registration and consent.
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Approval and review
PKB-PN v5.2 (EU) was approved by the DPO, Head of Information Governance and the Executive Board on the 21st of March 2022. | |
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Privacy Notice - Version 5.2 (EU) - Updated: [ |
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21.03.2022] - Reviewed: [19.03.2024] |