Financial support is provided as an Educational Grant by Pfizer Limited to enable Patients Know Best to employ a full-time equivalent project manager for a 2-year post to support the deployment of the Patients Know Best (PKB) MedEd Programme Initiative for academic institutions
This guide is for educational institutions using PKB to teach their students. Please read it alongside thePKB Manual.
Each educational institution decides how to use PKB, including whether they want to have patient volunteers or case study - fictitious- patients. These are the three options:
1. Simulated: fictitious records and fictitious users on Education server
Our simulated model with fictitious, case study patients, has been used in the years in different ways, here are a few examples:
Some of the universities give PKB some health data, from which we create case study patients in our Education server. Students are then able to look at that record, for example in the context of Problem Based Learning.
At City University Midwifery course, half of the students play the role of the Midwife, and half play the role of the parent-to-be, working on shared care planning within a case study scenario which was invented by the module lead. The students interact in the platform and then they switch roles.
2. Hybrid: fictitious records and real patients on Education server
In the hybrid model, the students work with patient volunteers or actors.
The earliest use of PKB for medical education purposes by University of Leicester Medical School started out with medical students using the platform to hone their digital communication skills. They practiced with fictitious patients acted out by individual volunteers. The Leicester team defined a database of fictitious patients - giving these individuals fake names, demographics, illnesses, medications, and allergies. A handful of volunteers operated the PKB platform and role-played their fictitious identity and their corresponding health in the PKB platform.
In some other universities, there are patient volunteers that are happy to bring their genuine health experiences and information, and interact with the students through our platform. Working with real patients gives students more authenticity. However, they do not use their real PKB record but create one on the education record. These individuals can conceal their identity if they wish but MUST NOT enter their real health care identifiers number.
Recruiting volunteer patients:
Some educators ask existing volunteers – individuals with real health/medical conditions who work with students – to use PKB’s education server
Some educators recruit in their communities
3. Live: real records of real patients on Production server
In this model, real patients open up their real record on our Production server to students so these can learn directly about real care and authentic records.
Students will look at the records under direct tutor supervision to ensure safeguarding of the patients' data.
The educators can ask their existing volunteers who already have real PKB records or recruit new volunteers who are willing to share their records. Educators can ask PKB to sign-post to existing PKB patients that the institution is recruiting volunteers.
Implementation Plan for Education
Setting up educational organisation
Sign contract for educational use of PKB
Choose who will register as coordinator users to configure your use of PKB with your educators and students (usually professors or university administrative staff)
Agree with PKB: the model use (simulated/hybrid/live), how the platform will be set up, and which features will be used
Professors and administrative staff attend the PKB training session
PKB Project Manager to set up the platform and invite the teams' coordinators
Coordinators to register and to invite all the educator who will be involved in monitoring the students’ use of PKB
PKB Project Manager registers as a coordinator and as a professional too, in order to be able to support the users if they have issues
Setting up student users
Coordinator invites each student to register using the educational email address of the student
Each student registers for a PKB professional account to use the platform
If agreed with the educators, your PKB Project Manager will provide an introduction to Patients Know Best and a demonstration of how to use the platform to all students during a lecture (remotely)
Educators provide students scenarios, guidance and protocol around how to use PKB, this can include:
Do’s and don’ts of PKB/online etiquette
What functionality will you encourage the students to use
What rules will be applied to the student teams in PKB - how they curate responses to volunteer patients in the platform - encourage shared decision making
Setting up fictitious patients - hybrid model
All patient users on PKB’s education server are volunteers and these individuals are ‘actors’ in the environment. But bear in mind that you don’t need to have patients volunteers in order to use PKB with students: you can create case study patients.
Educators must decide how many patient users they need for their student. Typically, one patient user is needed for each group of students: the students need to have one patient user to interact with, and the patient user’s record should not be available to other students so interactions are separate across student groups. A single volunteer can still be acting with multiple patient users with multiple logins, supporting multiple student groups.
To register the patient users, the Teams' coordinators should:
Create a CSV file of the required number of patient users (PKB Project Manager to send the CSV template file)
Each user needs an email address to receive the invite and fictitious demographics
Patients who don’t want to use their normal email address can set up another one free of charge onGmail.com orhotmail.com and can do so with a fictitious identity
Upload the CSV to the umbrella team of your organisation
Pre-populate the fictitious patients’ records as required, e.g. with diagnoses, symptoms and allergies etc.
Give your fictitious patients a script and instructions to use PKB (PKB Project Manager to send the instructions)
Allocate each patient user to the relevant student team
Setting up fictitious patients - simulated model
Coordinator creates dummy emails for the case study patients
Coordinator invites the case study patients to register, then completes registration
Coordinator decides who’s the person in charge of adding data to the fictitious patient’s record
Person in charge logs in as a patient and add data to the record.
Below you can find a video explaining our models of use and some example of how some education institutions are using PKB.