Paediatric teams are using PKB to give parents and carers more control over their child’s care and empower them with care plans, a comprehensive library and messaging functionality.

Current problems

• Parents/carers having to bring a child's medical history information to each appointment

• Disjointed care across multi services

• Lots of paper leaflets are being mailed to parents/patients

• Lack of communication across sectors

• Parents/carers having to repeat their child’s story

• Medication reconciliation

PKB solution

• Share information

• Share videos

• Share care plans

• Messaging involving the patient and all care providers

Paediatric Case Study

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Benefits

• Individual and group care plans

• Online resource library

• Secure messaging between patients & team

• Digitally appointment letters and appointments

• Access to laboratory results

• Symptom and measurement tracker

Key PKB features

Messaging

• Patients have access to secure messaging (saving time on the phone).

• Messaging across multi-care providers, including the parents/carers in the conversations

• Sharing videos

• Day to day questions about their child (saves a phone call and time / Nurses like this feature as they can answer PKB messages when it suits them/in between clinic appointments )

• When parents send videos, parents/carers add doctors and nurses to the thread so they can look at the video together

• Team can handover messages and bring different people into the message

Library

• Relevant leaflets into the library

• No more paper

• No more email content, it's all on PKB

• Meet the team videos / including admin staff - patients know the whole team

• Videos by the team instructing parents/carers/patients about different aspects of epilepsy

Care plans

• Individualised templates with escalation plans

• In and output charts

• Seizure Diary:

  • A place to track and record symptoms/triggers and seizures to share with the team

  • A place to share the different types of seizures the child has in non-medical terminology

  • A place for clinicians to document their diagnoses of specific seizures

• Medical History:

  • Detailed medical history with common questions parents/carers and patients are asked to repeat frequently

  • Capturing information once from parents/carers, patients, and clinicians

• All about me:

  • Complex needs assessment

  • Ability to print out when going into hospital so the parents/carer don’t have to repeat

• Contact:

  • Allows parents/carers and clinicians to record all contact details of the services the patient may have involved in their care

• Emergency plan:

  • A place to share the current emergency care plan with parents/carers/patients and clinicians

  • A resource to parents on how to administer emergency medications

• Epilepsy welcome care plan: sharing key information about the team and what to track

Consultations

• Write down questions / any changes since the last appointment

Journal

• Details of specific seizures, including the time preceding a seizure. The nurses have commented that this detailed information hasn’t been shared prior to PKB.

• Upload seizure videos

Symptoms & Measurements

• Tracking seizure triggers and types/frequency of seizures

• Allows clinicians and parents/carers to see trends or patterns

Comms

• The team has a monthly newsletter that they started writing about PKB very early in the project.

• The team discusses PKB with the parents/carers and patients at every opportunity, including prompting and reminding to enter info into PKB

• Fortnightly parent/carer meetings with the team to discuss all things epilepsy, including PKB and how its usage has improved outcomes

• Planning on doing face to face meetings with parents for comms and training

Team Engagement

• Using PKB with every patient, allowing PKB to be adopted by each member of the team

• The team knows that PKB will be very beneficial to their cohort, so they take the time to explain the system and benefits to their patients/parents/carers.

• Buy-in from cross-sector teams

Further information

• Paediatric access: workflows for children 16 and under having access to their PKB record

• Adding a parent or guardian: workflow for adding a parent or guardian to a child's record once they've registered as a patient in PKB

• Epilepsy teams: how PKB is being used by an epilepsy team to give patients carers and parents access to data and communicate with their childs team

• Epilepsy care plan template examples: three examples of care plans used by epilepsy pediatric teams