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Paediatric teams are using PKB to give parents and carers more control over their child’s care and empower them with care plans, a comprehensive library and messaging functionality.

Current problems

  • Parents/carers having to bring a child's medical history information to each appointment

  • Disjointed care across multi services

  • Lots of paper leaflets are being mailed to parents/patients

  • Lack of communication across sectors

  • Parents/carers having to repeat their child’s story

  • Medication reconciliation

PKB solution

  • Share information

  • Share videos

  • Share care plans

  • Messaging involving the patient and all care providers

Paediatric Case Study

Benefits

  • Individual and group care plans

  • Online resource library

  • Secure messaging between patients & team

  • Digitally appointment letters and appointments

  • Access to laboratory results

  • Symptom and measurement tracker

Key PKB features

Messaging

  • Patients have access to secure messaging (saving time on the phone).

  • Messaging across multi-care providers, including the parents/carers in the conversations

  • Sharing videos

  • Day to day questions about their child (saves a phone call and time / Nurses like this feature as they can answer PKB messages when it suits them/in between clinic appointments )

  • When parents send videos, parents/carers add doctors and nurses to the thread so they can look at the video together

  • Team can handover messages and bring different people into the message

Library

  • Relevant leaflets into the library

  • No more paper

  • No more email content, it's all on PKB

  • Meet the team videos / including admin staff - patients know the whole team

  • Videos by the team instructing parents/carers/patients about different aspects of epilepsy

Care plans

  • Individualised templates with escalation plans

  • In and output charts

  • Seizure Diary:

    • A place to track and record symptoms/triggers and seizures to share with the team

    • A place to share the different types of seizures the child has in non-medical terminology

    • A place for clinicians to document their diagnoses of specific seizures

  • Medical History:

    • Detailed medical history with common questions parents/carers and patients are asked to repeat frequently

    • Capturing information once from parents/carers, patients, and clinicians

  • All about me:

    • Complex needs assessment

    • Ability to print out when going into hospital so the parents/carer don’t have to repeat

  • Contact:

    • Allows parents/carers and clinicians to record all contact details of the services the patient may have involved in their care

  • Emergency plan:

    • A place to share the current emergency care plan with parents/carers/patients and clinicians

    • A resource to parents on how to administer emergency medications

  • Epilepsy welcome care plan: sharing key information about the team and what to track

Consultations

  • Write down questions / any changes since the last appointment

Journal

  • Details of specific seizures, including the time preceding a seizure. The nurses have commented that this detailed information hasn’t been shared prior to PKB.

  • Upload seizure videos

Symptoms & Measurements

  • Tracking seizure triggers and types/frequency of seizures

  • Allows clinicians and parents/carers to see trends or patterns

Comms

  • The team has a monthly newsletter that they started writing about PKB very early in the project.

  • The team discusses PKB with the parents/carers and patients at every opportunity, including prompting and reminding to enter info into PKB

  • Fortnightly parent/carer meetings with the team to discuss all things epilepsy, including PKB and how its usage has improved outcomes

  • Planning on doing face to face meetings with parents for comms and training

Team Engagement

  • Using PKB with every patient, allowing PKB to be adopted by each member of the team

  • The team knows that PKB will be very beneficial to their cohort, so they take the time to explain the system and benefits to their patients/parents/carers.

  • Buy-in from cross-sector teams

Further information

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