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Country’s healthcare system in a nutshell
The Swedish healthcare system is decentralised: the 21 regions are responsible for care provision and can decide whether to contract public or private providers. The system is publicpublicly funded, covering all the people resident in Sweden, regardless of their nationality. 85% of its financing originates from regional taxes, complemented by direct federal government transfers.
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(Welcome to the Swedish eHealth Agency, n.d.)
Public vs private
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The national PHR
History
The national PHR in Sweden is called Journalen. This is defined in the country as a Patient-Accessible Electronic Health Record (PAEHR), and can be accessed via the patient portal 1177.se. This service integrates EHR information from diverse systems used across Swedish healthcare organisations through a national health information exchange platform. The first region connected to the national infrastructure in 2012, and all of the others followed, with the last one connected in 2018 (Hägglund, Scandurra 2022).
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Inera AB, a company owned by the Swedish regional governments, manages the national patient portal 1177.se, including the PAEHR Journalen (Cijvat, Cornet and Hägglund, 2021).
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Features
Note from the author: the bibliography for this section is from 2018. We weren’t able to find more up-to-date information, but if you have access to them, please contact us.
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medical notes from the EHRs (from all health care professions and all connected health care providers who have agreed to give access, both public and private),
list of prescribed medications,
lab results,
warnings,
diagnosis,
maternity care records,
referrals,
vaccinations
In some of the regions, users have access to a log function, to see whoever has accessed their record.
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Challenges and areas for improvement
Data Fragmentation: despite the existence of the national 1177 patient portal in Sweden, the country employs various Electronic Health Record (EHR) systems. To address the challenge of consolidating EHR data for patients, Sweden has implemented a national Health Information Exchange (HIE) platform, however, challenges persist in achieving a comprehensive overview of health data. Variability in information accessibility among care providers, influenced by differing policies and regulations, contributes to a fragmented patient view based on the location, timing, and purpose of seeking treatment. This is closely related to the difficulty of agreeing on a national regulatory framework for patients’ direct access to their health information.
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(Hägglund and Scandurra, 2022)
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Published outcomes - statistics
Unfortunately, we couldn’t find any statistics about the use of the Swedish PHR. If you have access to this information or can put us in touch with someone who has, please contact us through the form below:at book@patientsknowbest.com
Screenshots
Unfortunately, we couldn’t find any screenshots of the Swedish PHR. If you have access to this information or can put us in touch with someone who has, please contact us at book@patientsknowbest.com
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