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Paediatric teams
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use PKB to give parents and carers more control over their child’s care and empower them with care plans, a comprehensive library and messaging functionality to self manage their care and health.
Current problems
Parents/carers
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have to bring a child's medical history information to each appointment
Disjointed care across multi-services
Lots of paper leaflets are being mailed to parents/patients
Lack of communication across sectors
Parents/carers having to repeat their child’s story
Medication reconciliation
PKB solution
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Immediate notification to patients/carer alongside a digital copy letter, accessible via the NHS App.
Share videos
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Digital and individual care plans
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Messaging involving the patient and all care providers
Paediatric Case Study
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, including Shared Decision Support Tools
Personal health record from birth
PKB benefits
Individual and group care plans
Online resource library
Secure messaging between patients
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, carer and team
Digitally appointment letters and appointments
Access to laboratory results
Symptom and measurement tracker
Paediatric Case Study
Key PKB features
Questionnaires
Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.
Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded and the patient has a copy. Teams can also identify patients suitable for virtual appointments or pre-operative assessment questionnaires.
PKB's advanced questionnaire functionality
The features include:
Scoring and calculations
Branching, allowing patients to complete the parts of the questionnaire that are relevant to them
Coded fields questionnaires can be mapped to clinical codes
Patients can save drafts
Send questionnaires to patients who aren’t registered or already in your team
Questionnaire templates
Messaging
Patients have access to secure messaging (saving time on the phone).
Messaging across multi-care providers, including the parents/carers in the conversations
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Day to day questions about their child (saves a phone call and time / Nurses like this feature as they can answer PKB messages when it suits them/in between clinic appointments )
When parents send videos, parents/carers add doctors and nurses to the thread so they can look at the video together
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No more paper
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Meet the team videos / including admin staff - patients know the whole team
Videos by the team instructing parents/carers/patients about different aspects of epilepsy
Care plans
Individualised templates with escalation plans
In and output charts
Seizure Diary
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A place to track and record symptoms/triggers and seizures to share with the team
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A place for clinicians to document their diagnoses of specific seizures
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Medical History:
Detailed medical history with common questions parents/carers and patients are asked to repeat frequently
Capturing information once from parents/carers, patients, and clinicians
All about me
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Complex needs assessment
Ability to print out when going into hospital so the parents/carer don’t have to repeat
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Contact:
Allows parents/carers and clinicians to record all contact details of the services the patient may have involved in their care
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Emergency plan:
A place to share the current emergency care plan with parents/carers/patients and clinicians
A resource to parents on how to administer emergency medications
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Epilepsy welcome care plan: sharing key information about the team and what to track
Consultations
Write down questions / any changes since the last appointment
Journal
Details of specific seizures, including the time preceding a seizure. The nurses have commented that this detailed information
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wasn’t shared prior to PKB.
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Upload seizure videos
Symptoms & Measurements
Tracking seizure triggers and types/frequency of seizures
Allows clinicians and parents/carers to see trends or patterns
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Comms
The team has a monthly newsletter that they started writing about PKB very early in the project.
The team discusses PKB with the parents/carers and patients at every opportunity, including prompting and reminding to enter info into PKB
Fortnightly parent/carer meetings with the team to discuss all things epilepsy, including PKB and how its usage has improved outcomes
Planning on doing face to face meetings with parents for comms and training
Team Engagement
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Using PKB with every patient, allowing PKB to be adopted by each member of the team
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The team knows that PKB will be very beneficial to their cohort, so they take the time to explain the system and benefits to their patients/parents/carers.
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Further information
Paediatric access: workflows for children 16 and under having access to their PKB record
Adding a parent or guardian: workflow for adding a parent or guardian to a child's record once they've registered as a patient in PKB
Epilepsy teams: how PKB is being used by an epilepsy team to give patients carers and parents access to data and communicate with their childs team
Epilepsy care plan template examples: three examples of care plans used by epilepsy pediatric teams