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The UK Kidney Association have chosen Patients Know Best (PKB) to re-platform their national patient-facing system – PatientView, to the PKB personal health records.
PatientView supports patients who receive care and treatment for renal disease in the UK by sharing a view of their clinical data using a patient portal. The move to PKB will build on this work by replacing the current portal to add advanced features including, care planning, team-based messaging and an ecosystem of integrated devices.
Meeting the needs of kidney communities
Chief Executive of the UK Kidney Association, Ron Cullen, said:
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Patients have access to secure messaging (saving time on the phone).
Messaging across multi-care providers, including carers in the conversations
Day to day questions about medication or symptoms experienced (saves phone call)
The team can handover messages and bring different people into the messageUniversal Messaging is the ability for patients to message clinical and non-clinical teams
Team-based messaging allows teams to automatically receive secure messages and questionnaires as a group rather than as individual
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Questionnaires
Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.
Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded and the patient has a copy. Teams can also identify patients suitable for virtual appointments or pre-operative assessment questionnaires.
PKB's advanced questionnaire functionality
The features include:
Scoring and calculations
Branching, allowing patients to complete the parts of the questionnaire that are relevant to them
Coded fields questionnaires can be mapped to clinical codes
Patients can save drafts
Send questionnaires to patients who aren’t registered or already in your team
Questionnaire templates
Pre clinic questionnaires
Post-operative questionnaires
Assessment for adult care in the day surgery unit
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Care plans
PKB has created a number of individualised and editable care plan templates for renal teams and their patients.
My Condition Care Plan: HL7 care plan allows patients to view up to date medications and treatment plans
Managing My Chronic Kidney Disease Care Plan: information care plan with videos and advice on how to manage chronic kidney disease
Managing My Symptoms with Advanced Kidney Disease Care Plan: what to track and monitor and information about the team
Enhanced Recovery After Surgery Care Plan: post-surgery care plan
My Kidney Results and Measurements Tracker Care Plan: a place to track blood pressure and weight and view kidney blood results
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Library
Relevant leaflets into the library
No more paper
No more email content, it's all on PKB
Meet the team videos / including admin staff
National and local support groups
Kidney treatment options
Living with Kidney disease
Journal
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Symptoms & Measurements
Track symptoms and measurements related to kidney disease
Allows clinicians to see trends or patterns
Patient ability to share their kidney data
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Test results
Some patients' records will directly integrate with a Trust, allowing for the immediate transmission of test results and reference ranges; however, if no such integration is in place, some patients will only receive results
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Patients receiving blood results as soon as they’ve been processed
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The clinical team can view bloods in PKB professional account
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from the UKKA. Ranges often vary due to differences in how laboratories perform their tests, which is why laboratories send reference ranges for each test result.
The healthcare organisation responsible for the kidney centre needs to send these reference ranges to the UKKA, which sends them to PKB to display alongside your test results.
The UKKA is now providing PKB with standard ranges for select tests: sodium, Haemoglobin, Albumin Creatinine Ratio in urine (ACR), Protein/Creatinine ratio in urine (PCR), Cholesterol, HbA1c, Phosphate, eGFR, Creatinine, Potassium, and Urea.
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Further information
Patient view: an overview of the partnership and how it benefits patients
Renal care plan templates: four renal-specific care plans used by renal teams - enhanced recovery post Kidney surgery, my advanced kidney, , My conditions HL7 care plan and my kidney tracker care planRenal consultation template: for patients to complete in preparation fortransplant follow up appointment
Renal Comms toolkit: includes background info, examples and useful information
The ‘future is bright’ for patients of the Kidney Dietetics Service: how the Kidney Dietetics Service at Hull University Teaching Hospitals NHS Trust supports acute renal patients via PKB
Kidney Dietetics at Hull: Using a personal health record to improve patient engagement and deliver a digital dietetics service to kidney patients
Improvements based on feedback from UK Kidney association patients blog: how patient usage and feedback are making improvements in the PKB