The UK Kidney Association have chosen Patients Know Best (PKB) to re-platform their national patient-facing system – PatientView, to the PKB personal health records.

PatientView supports patients who receive care and treatment for renal disease in the UK by sharing a view of their clinical data using a patient portal. The move to PKB will build on this work by replacing the current portal to add advanced features including, care planning, team-based messaging and an ecosystem of integrated devices.

Meeting the needs of kidney communities

Chief Executive of the UK Kidney Association, Ron Cullen, said:

Partnering with a leading provider of digital personal health records is a significant step for the UK Kidney Association and showcases our determination to provide quality platforms for patients to streamline their care. It was important that as an organisation, we evolved to meet the needs of the kidney communities that we serve.

Key PKB features

Messaging

• Patients have access to secure messaging (saving time on the phone).

• Messaging across multi-care providers, including carers in the conversations

• Day to day questions about medication or symptoms experienced (saves phone call)

• The team can handover messages and bring different people into the message

Questionnaires 

Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.

Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded and the patient has a copy. Teams can also identify patients suitable for virtual appointments or pre-operative assessment questionnaires.

PKB's advanced questionnaire functionality

The features include:

• Scoring and calculations

• Branching, allowing patients to complete the parts of the questionnaire that are relevant to them

• Coded fields questionnaires can be mapped to clinical codes

• Patients can save drafts

• Send questionnaires to patients who aren’t registered or already in your team

Questionnaire templates

• Pre clinic questionnaires

• Post-operative questionnaires

• Assessment for adult care in the day surgery unit

• Patient Reported Outcomes (PROMS)

• WLV questionnaire example

• Capturing Digital Outcome Measures

Care plans

PKB has created a number of individualised and editable care plan templates for renal teams and their patients.

• My Condition Care Plan: HL7 care plan allows patients to view up to date medications and treatment plans

• Managing My Chronic Kidney Disease Care Plan: information care plan with videos and advice on how to manage chronic kidney disease

• Managing My Symptoms with Advanced Kidney Disease Care Plan: what to track and monitor and information about the team

• Enhanced Recovery After Surgery Care Plan: post-surgery care plan

• My Kidney Results and Measurements Tracker Care Plan: a place to track blood pressure and weight and view kidney blood results

Library

• Relevant leaflets into the library

• No more paper

• No more email content, it's all on PKB

• Meet the team videos / including admin staff

• National and local support groups

• Kidney treatment options

• Living with Kidney disease

Journal

• A space for patients to record their thoughts

Symptoms & Measurements

• Track symptoms and measurements related to kidney disease

• Allows clinicians to see trends or patterns

• Patient ability to share their kidney data

Test results

• Patients receiving blood results as soon as they’ve been processed

• The clinical team can view bloods in PKB professional account

• Patient ability to share their kidney data

Further information

• Patient view: an overview of the partnership and how it benefits patients

• Renal care plan templates: four renal specific care plans used by renal teams - enhanced recovery post Kidney surgery, my advanced kidney,, My conditions HL7 care plan and my kidney tracker care plan

• Renal consultation template: for patients to complete in preparation for transplant follow up appointment

• Renal Comms toolkit: includes background info, examples and useful information

• The ‘future is bright’ for patients of the Kidney Dietetics Service: how the Kidney Dietetics Service at Hull University Teaching Hospitals NHS Trust supports acute renal patients via PKB

• Kidney Dietetics at Hull: Using a personal health record to improve patient engagement and deliver a digital dietetics service to kidney patients

• Improvements based on feedback from UK Kidney association patients blog: how patient usage and feedback are making improvements in the PKB