Patients Know Best (PKB) has been used by different respiratory teams over the years to better manage the cohort of patients, from a lung defence team, assisting their patients with remote monitoring of their complex lung infection, COPD and asthma teams and Interstitial Lung Disease team to improve communications and information to patients to patients.
This deploy page will show you how different respiratory services can use PKB and features teams are already using with their patients.
Current problems
Teams experience a high level of face-to-face appointments
Telephone conversations are lengthy
Teams want to give patients online resources to support self-management
Teams want patients to have access to their blood results
Teams want to enable digital consent
Patients travel long distances for short hospital appointments
Large waiting times, patient conditions can improve and deteriorate, meaning care and health needs change
High DNA rates
PKB solutions
A central, secure place for information and healthcare data to sit in the hands of the patient
Empowers patients to contribute to their own goals and care plans
Provides access to prevention and health promotion resources
Access to management advice, with patients being fully involved in their care through shared decision-making and self-management
Digital care plans
Supporting patients at home
Universal messaging, the ability for patients and teams to send messages in a timely, flexible way and all in the patient's record
PKB features
There are key PKB features all orthopaedic services can use with their patients to support them while they wait, both preop and post-operatively. A list of them is below.
Messaging
Patients have access to message their healthcare team(saving time on the phone)
The Admin team can triage messages. Either resolving or passing onto another speciality team
Universal Messaging is the ability for patients to message clinical and non-clinical teams
Team-based messaging allows teams to automatically receive secure messages and consultations as a group rather than as individuals
Library
Disease and condition information with advice and resources
Treatment plans, for example, a rehab program with videos and advice a patient needs to watch and read each week
How to take medication or manage home oxygen
Advice on Living well, including exercise, healthy eating, quitting smoking and alcohol recommendations
Details and links to National and local support groups and website
Professional alliance information
Treatments options for orthopaedic conditions and pain management
Care plans
PKB care plans can be used at every stage of a patient's condition journey, below are some of the care plan templates being used and templates that can be created.
Living Well for Longer
Condition information and resource care plans for different types of respiratory diseases
Goals setting care plan like the Me and my goals, with a physical check care plan
Mental health well-being information and resource
Pasific condition care plans like My RSV care plan giving advice and support
Your asthma action plan
COPD Self Management Plan
Consultations
PKB allows patients to complete any forms, surveys or questionnaires (collectively called 'Consultations'). Consultations can be sent on an individual basis or sent to a whole cohort of patients. The output of the consultations can be aggregated and anonymised and is available via the API or as a CSV download.
Teams can get patients to fill in consultations periodically, in some cases these are pre-appointment or post-operative assessments. Below are some of the consultation templates being used by teams.
Annual Review and Flare Up questionnaires
Symptoms and quality of life questionnaire
Pain questionnaire
Add and view data
Patients can view hospitals and GP data where an integration with PKB has been set up
Data can include blood tests, x-ray reports, clinic and appointment letters, appointments and discharge summaries
Patients can add information themselves, including operations and conditions
Patients can track key measurements and add any symptoms related to their orthopaedic condition
Benefits
Individualised care plans
Appropriate resource library specific to the patient’s condition
Timely and flexible messaging between patients and team
Digital appointment letters and appointments
Access to laboratory results
Symptom and measurement tracker
National quality of life questionnaires
Digital consent
Completion of consultations and PROMs
The ability for hospital PAS to add patients to the relevant team in PKB (i.e. pain/surgical/rehab team)
Example Goal for using PKB
Reduce the number of patients not attending appointments (DNA) of the respiratory team by Sept 2023 (12 months post team go live) from (current DNA rate) to ( %) by sending all appointment letters and appointment details into PKB instead of by post. Current DNA rates are (%). 12 months post go live, the team compare DNA rates of patients with and without a PKB record. It is a local NHS priority to reduce DNAs to save money.
Use cases of PKB
The below examples show how PKB is being used in respiratory services, if you would like to know more about these teams and want to start using PKB in your service please speak to your Success PM or look at our case studies here for more examples of how PKB is being used in other specialty areas.