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Here you can control what your teams and carers can see in your record.
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How do I share my record with a carer?
You can allow carers to access your record to help you manage your health. Click 'Friends/Family' on the Sharing page and then click 'Add carer' and provide their details. Choose which privacy labels you want them to be able to see.
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If your healthcare team do not use PKB you can still give individual health care professionals access to your record to help manage your care. Click 'Professionals' on the Sharing page and then click 'Add an individual' and add their details. Choose which privacy labels you want them to be able to see.
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It is possible to disable all sharing of all your data. This means that professionals can never give themselves access to your record other than to see data they themselves have added and that no one except you can see your medical record in PKB. Even breaking the glass is not possible, so the PKB record cannot be used in an emergency.
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Your record must have a National Identifier, so that your record cannot be recreated by another user.
A Privacy Officer from an organisation with access to your record must explain the implications of disabling sharing to you along with the other ways to stop sharing. It is really important that you fully understand the impact of stopping the sharing of your data because there are implications for clinical safety by stopping record access. Once this is explained to you, you must provide informed consent to disable sharing of your record.
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Patients under the age of 16 cannot disable sharing because professionals have a legal duty to access the record of a child. This is part of the features of looking after a child's record.
Adult patients who lack mental capacity also cannot disable sharing because they cannot give informed consent. There must be an assessment of the patient's mental capacity before sharing can be disabled.
How do I change my contact preferences & consent?
When you log in for the first time, you may be asked to complete our advanced consent questions. These questions may ask for your contact preferences or if you agree to help with research.
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If you need further information on what these questions mean, please click here.
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