Introduction
PKB is being used successfully by mental health teams in the UK. In this section, we highlight some of the problems faced by mental health teams and their service users and how PKB can address these. We look at the use case of a Mental Health Trust in Sussex and how generally PKB can be used in mental health, within the care of severe mental illness, the NHS and in private mental health.
Current problems
Care plans are written but not accessible even when requested
Feels like a tick box exercise, not personalised care
No way of sharing information with service users
All questionnaires are done on paper and are not always accessible to service users
Service users repeating themselves, no central place for care plans
Mental health teams don't have all the information and data they need
PKB solution
Integration with Care Notes
Patients have access to their healthcare data all in one secure place
Digital care plans
Integration to Care Notes, allowing services users access to appointment letters and appointments
Integration with EMIS for demographics, diagnosis, medications and allergies
Digital recovery platform for severe mental illness
Creating a single source for care and a central place for care plans to sit
Online resource library
Secure messaging between service users and the team
Symptom and measurement tracker
Mental Health Organisation rollout of PKB
In 2021, Sussex Partnership NHS Foundation Trust started using PKB, to enable their service users to access their mental and physical health records whenever they needed them, in one place. Importantly, it also allowed them to choose to share parts of their record with others involved in their care, including their GP, other NHS Trusts, care workers, friends and family carers.
Below is what they've achieved so far:
All active adult users have been added to PKB
33,000 records created
Part of a Multi Organisation Network
23% of patients registered with their record
Over 7,000 registering a week (since April 2022)
80% by NHS login and 20% via email invitation
NHS login is widely promoted (customised login, on the comms, website and on clinic letters)
Support team - adding email address manually
Clinical input
Care plans - any service users with a care plan will see this in their PKB record in PDF format
Care Notes integration with PKB gives services users access to their 'My care and safety care plan'
The Care plan is created, completed and published in Care Notes and sent to PKB
Creating patient PKB records via integration, demographics
Care Notes do a demographic update or the support team is trained to add patient's emails manually
Sharing data within the network they are part of
PKB process in place to document the privacy label changes
Appointment letters, appointments, and care plans are all under the mental health privacy label
Treating the data the same as general health
Giving patients access to their data was the driving force
Recall questionnaire through an API
Key PKB features
Questionnaires
Quality of life questionnaires
Depression scores and programme questionnaires
About Your Mental Health Questionnaire
Messaging
Patients have access to secure messaging (saving time on the phone)
Admin team can triage and either resolve or pass on messages
Library
A wealth of resources
Online patient leaflets
Support group information
Videos
Care plans
Shareable plans of care
HL7 care plans sent to PKB from Care Notes
My care and safety care plan
Individualised templates with escalation plans
A place to track and record symptoms
Daily journal care plan
Journal
A place for thoughts and feelings
Document recovery
Appointments
Appointment letters and appointments sent to PKB via integration
Manually entered appointments
Medicines
Document medications, past and current
Medication integration
Symptoms
Tracking and recording symptoms digitally
Workflow
Comms Examples
Sussex Partnership NHS Foundation Trust Web page gives patients information and a link to register with their PKB record via the NHS login. https://www.sussexpartnership.nhs.uk/my-health-and-care-record
The below tri-leaflet is also sent to the patient alongside clinical or appointment letters.
Clear information for services users and patients on how to register with their PKB record, what data they will see and how their teams will use PKB with them.
Further information
How to capture digital outcome measures in PKB: examples outcome measure questionnaire templates and workflow
Severe mental illness: using PKB to provide a digital recovery platform
Mental Health questionnaire templates: examples of questionnaires used by mental health teams
Mental Health care plan template: example of a care plan used by a mental health team
A digital recovery platform for severe mental illness: NHSX Digital Playbook using PKB as the digital solution for the severely mentally ill