Introduction
PKB is providing mental health teams and service users a secure platform to view their health and care records, access information about their treatment plans, review medication details, and communicate with their care team, all of which can be made accessible via the NHS App (more information available here). Greater visibility and control over a person's health and care information enable individuals to participate actively in decision-making and self-management through enhanced engagement. To read more about how PKB is the solution for many teams and organisations scroll below.
Current problems
Care plans are written but not accessible
Tick box exercise
Not personalised care
There is no way of sharing information with service users
All questionnaires are done on paper
Service users repeating themselves, no central place for care plans
Mental health teams don't have all the information and data they need
Large number of people require mental health services
PKB solution
Integration with Care Notes
Access to healthcare data in one secure place
Digital care plans
Access to appointment letters and appointments
Integration with EMIS
Digital recovery platform
Online resource library
Secure messaging between service users and the team
Symptom and measurement tracker
Digital questionnaires
PKB Benefits
Empowers patients
Access to their health and care records in a single place
People feel more empowered to manage their health and wellbeing
Joining together data from different health providers
Enables patients to track their own health and care
People feel supported by their wider circle of health collaborators
Improves communication
Core features
Some of the core features teams use in PKB to support mental health service delivery include:
Mental Health Organisation rollout of PKB
In 2021, Sussex Partnership NHS Foundation Trust started using PKB, to enable their service users to access their mental and physical health records whenever they needed them, in one place. Importantly, it also allowed them to choose to share parts of their record with others involved in their care, including their GP, other NHS Trusts, care workers, friends and family carers.
Below is what they've achieved:
All active adult users have been added to PKB
Over 50,000 records created
Part of a Multi Organisation Network
34% of patients registered
76% by NHS login
Clinical input
Care plans - any service users with a care plan will see this in their PKB record in PDF format
Care Notes integration with PKB gives services users access to their 'My care and safety care plan'
The Care plan is created, completed and published in Care Notes and sent to PKB
Creating patient PKB records via integration, demographics
Care Notes do a demographic update or the support team is trained to add patient's emails manually
Sharing data within the network they are part of
PKB process in place to document the privacy label changes
Appointment letters, appointments, and care plans are all under the mental health privacy label
Treating the data the same as general health
Giving patients access to their data was the driving force
Recall questionnaire through an API
Key features
There are key PKB features all mental health services can use with their cohort to capture and view data. A list of them is below.
NHS App
Information from healthcare providers can be accessible via PKB’s web solution and via PKB’s jump off points in the NHS App;
Questionnaires
Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.
Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded, and the patient has a copy. Teams can also identify patients suitable for virtual appointments or PIFU.
PKB's advanced questionnaire functionality
The features include:
Scoring and calculations
Branching, allowing patients to complete the parts of the questionnaire that are relevant to them
Coded fields questionnaires can be mapped to clinical codes
Patients can save drafts
Send questionnaires to patients who aren’t registered or already in your team
PKB’s advanced questionnaire functionality and automated scoring of assessments will be provided, and coded questionnaire responses will be mapped to the patient's graphed measurement section, making it easier for patients and their healthcare collaborators to understand any trends and progress of deterioration as assessments take place over a period of time.
Messaging
Patients have access to message their healthcare team (saving time on the phone)
The Admin team can triage messages. Either resolving or passing onto another speciality team
Universal Messaging is the ability for patients to message clinical and non-clinical teams
Team-based messaging allows teams to automatically receive secure messages and consultations as a group rather than as individuals
Care plans
PKB’s shared care plans are unique, as they can be co-created and co-edited by anyone with access to the patient's record, including patients and carers. They provide better direction for personalised care by:
Document mental health history
No repetition
Triggers and background to mental health condition
Educational materials
Signposting
Goal writing
Care plan Templates
PKB has a general care plan toolkit and there are several mental health-specific care plans that are already in use by our mental health user base such as:
Bipolar disorder: Is Valproate The Right Treatment For Me? (NHSE decision support tools care plan converted into a PKB care plan
Journal
A place for thoughts and feelings
Document recovery
Recovery journal
Journaling
Appointments
Appointment letters and appointments sent to PKB via integration
Manually entered appointments
Access upcoming and past appointments
Including face-to-face, video and telephone consultations
Share all details of the appointment
Across PKB sites, patients registering for PKB have led to a 34% reduction in DNA rates (comparing the same patient cohorts pre- and post-registration to the platform). PKB’s DNA page.
Medicines
Data feeds from NHS organisations.
Feed includes information on the medication name, dose and unit, frequency, additional instructions on how this should be taken, the start date and the proposed review/end date.
Medication adherence
Descriptiong of why the drug has been prescribed, how this should be taken, dosage information
Potential side effects
Symptoms
Tracking and recording symptoms digitally
Guide patients on symptom management action to take if required, RAG instructions
Add and View Data
Patients can automatically be added to the correct team through an integrated demographics feed, whereby these resources will be readily available without any manual intervention required by professionals.
Patients can view hospitals and GP data where an integration with PKB has been set up
Data can include blood tests, x-ray reports, clinic and appointment letters, appointments and discharge summaries
Patients can add information themselves
Patients can track key measurements and add any symptoms related to their mental health
Comms Examples
Sussex Partnership NHS Foundation Trust Web page gives patients information and a link to register with their PKB record via the NHS login. https://www.sussexpartnership.nhs.uk/my-health-and-care-record
The below tri-leaflet is also sent to the patient alongside clinical or appointment letters.
Further information
How to capture digital outcome measures in PKB: examples outcome measure questionnaire templates and workflow
Severe mental illness: using PKB to provide a digital recovery platform
Mental Health questionnaire templates: examples of questionnaires used by mental health teams
Mental Health care plan template: example of a care plan used by a mental health team
A digital recovery platform for severe mental illness: NHSX Digital Playbook using PKB as the digital solution for the severely mentally ill
Video testimonial of a patient on a waiting list for CBT: given PKB so he could independently act on this advice at home whilst waiting for this therapy to start
Video testimonial of a patient with long term mental health and physical health conditions: didn’t feel in control of their own health and struggled to communicate her background and needs.