Renal Teams

Owned by Mohammad Al-Ubaydli
Last updated: Oct 04, 2024 by Hannah Johnson-Keck
4 min read

The UK Kidney Association have chosen Patients Know Best (PKB) to re-platform their national patient-facing system – PatientView, to the PKB personal health records.

PatientView supports patients who receive care and treatment for renal disease in the UK by sharing a view of their clinical data using a patient portal. The move to PKB will build on this work by replacing the current portal to add advanced features including, care planning, team-based messaging and an ecosystem of integrated devices.

Meeting the needs of kidney communities

Chief Executive of the UK Kidney Association, Ron Cullen, said:

Partnering with a leading provider of digital personal health records is a significant step for the UK Kidney Association and showcases our determination to provide quality platforms for patients to streamline their care. It was important that as an organisation, we evolved to meet the needs of the kidney communities that we serve.

Key PKB features

Messaging

  • Patients have access to secure messaging (saving time on the phone).

  • Messaging across multi-care providers, including carers in the conversations

  • Universal Messaging is the ability for patients to message clinical and non-clinical teams

  • Team-based messaging allows teams to automatically receive secure messages and questionnaires as a group rather than as individual

iPad Outline - Messaging.png

Questionnaires 

Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.

Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded and the patient has a copy. Teams can also identify patients suitable for virtual appointments or pre-operative assessment questionnaires.

PKB's advanced questionnaire functionality

The features include:

  • Scoring and calculations

  • Branching, allowing patients to complete the parts of the questionnaire that are relevant to them

  • Coded fields questionnaires can be mapped to clinical codes

  • Patients can save drafts

  • Send questionnaires to patients who aren’t registered or already in your team

Questionnaire templates

questionnaire.png

Care plans

PKB has created a number of individualised and editable care plan templates for renal teams and their patients.

Library

  • Relevant leaflets into the library

  • No more paper

  • No more email content, it's all on PKB

  • Meet the team videos / including admin staff

  • National and local support groups

  • Kidney treatment options

  • Living with Kidney disease

Symptoms & Measurements

  • Track symptoms and measurements related to kidney disease

  • Allows clinicians to see trends or patterns

  • Patient ability to share their kidney data

Test results

Some patients' records will directly integrate with a Trust, allowing for the immediate transmission of test results and reference ranges; however, if no such integration is in place, some patients will only receive results from the UKKA. Ranges often vary due to differences in how laboratories perform their tests, which is why laboratories send reference ranges for each test result.

The healthcare organisation responsible for the kidney centre needs to send these reference ranges to the UKKA, which sends them to PKB to display alongside your test results.

The UKKA is now providing PKB with standard ranges for select tests: sodium, Haemoglobin, Albumin Creatinine Ratio in urine (ACR), Protein/Creatinine ratio in urine (PCR), Cholesterol, HbA1c, Phosphate, eGFR, Creatinine, Potassium, and Urea.

Further information