Patients with Inflammatory Bowel Disease (IBD), such as Crohn's disease or ulcerative colitis, are successfully using PKB to self-monitor their symptoms and track their condition.

PKB provides patients and the team with a platform for more effective, patient-centred overall management of IBD.

PKB key features

Questionnaires 

Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.

Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded and the patient has a copy. Teams can also identify patients suitable for virtual appointments or pre-operative assessment questionnaires.

PKB's advanced questionnaire functionality

The features include:

• Scoring and calculations

• Branching, allowing patients to complete the parts of the questionnaire that are relevant to them

• Coded fields questionnaires can be mapped to clinical codes

• Patients can save drafts

• Send questionnaires to patients who aren’t registered or already in your team

Questionnaire templates

• Patient Reported Outcomes (PROMS)

• Capturing Digital Outcome Measures

• Pre clinic questionnaires

• Post-operative questionnaires

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Messaging

• Patients have access to message their healthcare team (saving time on the phone)

• The Admin team can triage messages. Either resolving or passing onto another speciality team

• Universal Messaging is the ability for patients to message clinical and non-clinical teams

• Team-based messaging allows teams to automatically receive secure messages and questionnaires as a group rather than as individuals

• Patient initiated messaging

• Ability to share videos, files and images securely

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Library

• A wealth of resources such as Diet Advice, Counselling Info, and Educational Info on IBD

• Central trust library for advice, services and information

• Disease and condition information with advice and resources

• Treatment plans, for example, a rehab program with videos and advice a patient needs to watch and read each week

• Advice on Living well, including exercise, healthy eating, quitting smoking and alcohol recommendations

• Details and links to National and local support groups and website

Care plans

PKB care plans can be used at every stage of a patient's condition journey, below are some of the care plan templates being used and templates that can be created.

• Condition information and resource care plans

• Monitoring condition plan (here is an example of one)

• Rehab, physical activity and musculoskeletal health

• Goals setting care plan

• 8-Week Orthopaedic Prehabilitation plan

• ACL Reconstruction Proforma care plan

• Individualised templates with escalation plans, a place to track and record symptoms

• In and output charts

Add and view data

• Patients can view hospitals and GP data  where an integration with PKB has been set up

• Data can include sharing blood tests, x-ray reports, clinic and appointment letters, appointments and discharge summaries 

• Patients can add information themselves, including operations and conditions

• Patients can track key measurements and add any symptoms related to their orthopaedic condition

Example goal

• To give patients the ability to monitor their own symptoms, decide when they need to go to the hospital and seek information and advice about self-management of their IBD, preventing acute hospitalisation.

Workflow

1. PKB: receives patient’s appointment

2. PKB: notifies patient about appointment

3. Patient: attends appointment with the IBD team

4. IBD Team: views patients PKB record and adds care plan

5. PKB: notifies patients a care plan has been added

6. Patient: reads care plan, starts tracking symptoms

7. IBD Team: view patient’s BP and symptoms and changes treatment plan when needed

Further information:

• Colonoscopy consent care plan template: how to provide informed consent to patient digitally

• Diet in and output chart: a care plan for patients to record their in and output

• IBD Case studies: where PKB has successfully been deployed in IBD teams

• Remote monitoring facilitates the management of inflammatory bowel disease: NHSX gastroenterology digital playbook showcasing PKB

• Non-face-to-face delivery of an inflammatory bowel disease service: NHSX gastroenterology digital playbook showcasing PKB

• Giving patients with intestinal failure access to their personal health record: information sharing between different organisations using PKB